July 4, 2017
July - Ehlers Danlos Syndrome
This month, Give Back Bingo are raising money to help Ryan, a 9-year-old child in need of treatment for Ehlers Danlos syndrome, as well as Ehlos Danlos Support UK, a charity fighting the effects of this condition.
Ehlers Danlos Syndrome (EDS) is a connective tissue disorder that affects skin, joints, muscles and the way in which the body’s major organs function.
Ryan was diagnosed with the condition at the age of just 6, and continues to fight challenges that have had a profound impact on his health and day-to-day life.
Ryan is a former patient of Great Ormond Street Hospital, your nominated Give Back Charity in May, and he needs further treatment to enhance and prolong his overall quality of life.
Whilst this condition cannot be cured, Ryan’s chances of an improved life can be enhanced with the necessary treatment.
Give Back Bingo are committed to contributing to help Ryan and other people with EDS, to help them enjoy a fulfilled, happy life; please join us in contributing funds to ease their pain and enhance their lifestyle.
For more information about Ryan’s story, please visit https://gogetfunding.com/ryanvseds/.